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Post by Admin on Dec 21, 2013 18:25:59 GMT -8
Anyone's thoughts are welcome. Here is the proposed Mission Statement of this website.
Our mission is to help professionally communicate quality and reliable information to prostate cancer survivors by allowing patient advocates a secure environment to share their perspectives and experiences between each other and the medical professional community.
Tony
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Post by Admin on Dec 23, 2013 9:45:18 GMT -8
I modified the statement slightly. The word "safe" is replaced by the word "secure".
The difference I believe is important. Of course safe is still present but I think it's important from other sites that patients visit in anonymity we must have your email addresses and must know your angle to advocacy. For this reason your registration asks for that information and also an anti spamming filter asked for you to verify your activation through your an email activation key. This email information is shared only by other members.
Thanks again!
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PaulC
New Member
Posts: 4 
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Post by PaulC on Jan 2, 2014 20:38:07 GMT -8
I wonder if the phrases "prostate cancer survivors" and "patient advocate" are exactly right.
First, tone:
• Many of us dislike the term "survivor"; a more neutral term might be "diagnosee".
Second, scope:
• Is the board limited to diagnosees only?
• Or, instead, might it also be open to the worried undiagnosed?
• Might it be open to spouses and partners of diagnosees?
• How about widow[ers] of nonsurvivors?
• Are advocates confined to advocating for patients only?
Or, instead, might there also be advocates for ...
- prevention?
- testing?
- needs of former patients?
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Post by Tony Crispino on Jan 2, 2014 21:01:55 GMT -8
Haha,
Shit Paul. I haven't even fully addressed language issues! Let me ask. Of each of your suggestions what do you think we should be? I like an open door policy. But it leaves issues open when we can want direct physician information to undesirable posting.
This is an experiment in that way. So...what are your thoughts in a best effort?
Tony
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Post by CedarChopper on Jan 2, 2014 21:57:33 GMT -8
Sometimes a short, slightly wrong word (e.g., as noted by Paul, survivor doesn't seem to include loved ones)
is better than five, boring, unread, subordinate clauses of accuracy.
"Those affected by Prostrate Cancer" seems a bit non-committal to this "patient" who has been in the trenches.
A little edginess might sell more programs to the ball game than "bland funeral home organ Wurlitzer music."
Tryin' to run a service here
- (for people - many that might be panicked and/or near despair - that need intelligent advice that can be trusted)
- not defend the wording of a dissertation!
Cedar
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Post by Tony Crispino on Jan 2, 2014 22:20:16 GMT -8
OK. Haha!
Two people I love are going to join my mission statement committee. Let's have some creativity! How can I improve the statement?
:-)
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Post by Virgil Simons on Jan 3, 2014 2:15:45 GMT -8
Hi, Tony
Concept is great of trying to be a forum of consensus around advocacy, but I wonder, as we did several years ago, when forming the Prostate Cancer Roundtable, of how do we focus our efforts versus many disparate voices.
Ultimately it comes down to Marketing 101: who do you want your audience to be; what is the "product" you want to deliver; what is the criteria for success.
It's been 18 years for us at The Prostate Net evolving from local activism in NJ to today where we have our fingers in pies around the world, and still don't do it all right! But the one thing of which I am certain is that we need to create critical mass to do for men's health what has happened with Breast Cancer, AIDS awareness, and other similar initiatives.
Keep the passion and the commitment going, Tony; we need you!
V
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Post by CedarChopper on Jan 3, 2014 7:53:11 GMT -8
Why Tony, you know I personally am just selling Fresh Produce!
- with a personal mission of pushing the cruciferous vegetables to anyone I can . . .
I like your statement and MIGHT (although I personally like the bright-side-edginess of the term)I MIGHT change "prostrate cancer survivors" to something like "those battling prostrate cancer." This wording might be more effectively inclusive.
Keeping in mind that a Mission Statement can be a useful lens / foundation - or an instrument of obfuscation.
The alertness / efficacy of the Site's SERVICE delivery is the crux of the matter.
What Virgil and PaulC said ___ and: Avoid wordiness and bland panacea.
Your statement works as is:
Our mission is to help professionally communicate quality and reliable information to prostate cancer survivors by allowing patient advocates a secure environment to share their perspectives and experiences between each other and the medical professional community.
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PaulC
New Member
Posts: 4
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Post by PaulC on Jan 3, 2014 10:54:06 GMT -8
-- Paul's suggestion, version 1.02: ----->
Our mission is to talk with people affected by prostate cancer -- especially men contemplating or receiving treatment but also advocates, medical professionals, and others. We communicate high-quality and reliable information, and we provide advocates a comfortable environment in which to share their perspectives and experiences, both with each other and with the medical community.
<------
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Post by Mission Statement on Jan 8, 2014 20:59:43 GMT -8
TC. I like your mission statement. In light of the comments about survivor, yada yada and yada...
How about we just use the phrase "for those dealing with prostate cancer, their spouse or partner, brothers, sisters, children or grandchildren"
That would be my two cents worth of counsel.
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Post by Tony Crispino on Jan 8, 2014 21:44:00 GMT -8
Wow thank you all for these responses. I'll probably be reaching out to each I can. I say that because our mystery poster I think hit it right. Mission Statement is right. The statement needs to be all inclusive.
I have a great admiration for Virgil as well. I am in his footsteps in research committees and he has always been the highest level advocate.
Again thank you all.
Tony
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Post by Tony Crispino on Jan 8, 2014 21:56:16 GMT -8
Paul,
When can you get together on a call. You have a lot of opportunities there and trying to narrow a statement that includes them is challenging. That's what I'm trying to do with the mission statement. Message me...
Tony
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